A partnership between UW and WSU

Washington Center for Muscle Biology

research . training . discovery . treatment

Homemade Tater Tot

Tater Tot is a brave little boy who was recently diagnosed with Duchenne muscular dystrophy.  His parents, like all parents in this situation, are scared.  They are also fighters.

Homemade Tater Tot is a blog written by his mother that chronicles the life of a family coping with a tragic diagnosis (best to start reading from the beginning).  It is an account of their emotions, frustrations and curiosities and is written with great candor.  It also provides a thorough description of the disease and their experiences, both at home and in the clinic, with a clarity that often eludes academics.

His mother has granted permission to link this blog to our site in hopes that her experiences will help others struggling to understand the “whys” and “hows” of dealing with this disease.  She is the strongest person I know and a model mother.  To a researcher, her writings provide perspective.  To a parent of an afflicted child, strength.

Personally, I find the blog both uplifting and inspiring.  It motivates me to write another grant, to publish another paper and to explore new and novel ideas.  It makes me care, deeply, about this family, their experiences and most importantly, about finding a cure.

Buel D. Rodgers, Ph.D. (a.k.a. Dan)
Director, Washington Center for Muscular Dystrophy

 

 

Washington Center for Muscle Biology, ASLB 124, Department of Animal Sciences, Pullman WA 99164, 509-335-2991, Contact Us
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