Homemade Tater Tot
Homemade Tater Tot is a blog written by his mother that chronicles the life of a family coping with a tragic diagnosis. It is an account of their emotions, frustrations and curiosities and is written with great candor. It also provides a thorough description of the disease and their experiences, both at home and in the clinic, with a clarity that often eludes academics.
His mother has granted permission to link this blog to our site in hopes that her experiences will help others struggling to understand the “whys” and “hows” of dealing with this disease. She is the strongest person I know and a model mother. To a researcher, her writings provide perspective. To a parent of an afflicted child, strength.
Personally, I find the blog both uplifting and inspiring. It motivates me to write another grant, to publish another paper and to explore new and novel ideas. It makes me care, deeply, about this family, their experiences and most importantly, about finding a cure.
Buel D. Rodgers, Ph.D. (a.k.a. Dan)
Director, Washington Center for Muscular Dystrophy